Privacy Policy

Effective February 28, 2023

This Privacy Policy applies to your access and use of Zevra Therapeutics, Inc. and its affiliates’ (collectively “Zevra”, or “we”, “us” or “our”) Website. By using the Website, you confirm that you have read and agree to be bound by this Privacy Policy. If you disagree with any part of this Privacy Policy, then please do not use the Website.

This Privacy Policy explains the policies and practices that we have developed to safeguard personal information and to comply with applicable data protection laws. Please read this notice carefully to understand what information we collect, how we collect it, how we use it, who we may disclose it to, and how you can manage your personal information. We control and operate the Website from within the United States of America. Our online privacy practices are governed by the laws of the United States and the State of Florida, which may differ from privacy laws in your state or home country. By submitting your personal information to us through the Website, you consent to the transfer of your personal information to any country and its use and disclosure in accordance with applicable U.S. Federal and State laws and with this Privacy Policy.

California Residents: This Privacy Policy describes how we collect, use, disclose, sell, share, and retain your personal information. For additional information relating to your rights and our processing of your personal information collected both online and offline, please navigate to the Additional State Disclosures section below.

Our Privacy Policy is organized in the following sections. For immediate access to a particular section, click on the title.

We collect information about you directly from you, automatically through your use of our Site, and from third parties.

Information We Collect Directly From You. We collect personal data you choose to provide to Zevra, e.g., in connection with your registrations, inquiries and purchases. For example, you may choose to provide your name, contact information, health, insurance and/or financial information in connection with a promotion or a patient assistance or support program. Healthcare providers may choose to provide information relating to their specialties and professional affiliations.

Information We Collect Automatically. We and our third party business partners automatically collect information when you use our Site, such as your browser type and operating system, web pages you view, links you click, your IP address, the length of time you visit our Site, and the referring URL, or webpage that led you to our Site. Our third party business partners may use these technologies to collect information about your online activities. See also, the Section below on Cookies and Other Tools.

Information We Collect From Other Sources. From time to time, we may use or augment the personal data we have about you with information obtained from other sources, such as public databases, social media platforms and other third parties. For example, we may use such third party information to confirm contact or financial information, to verify licensure of healthcare professionals or to better understand your interests by associating demographic information with the information you have provided. If you submit any personal data relating to other people to us, you represent that you have the authority to do so and to permit us to use the information in accordance with this Privacy Policy.

Any of the information we collect from you may be used in one of the following ways:

  • To personalize your experience: Your information helps us to better respond to your individual needs.
  • To improve our website: We continually strive to improve our website offerings based on the information and feedback we receive from you.
  • To improve customer service: Your information helps us to more effectively respond to your customer service requests and support needs.
  • To process transactions: Your information, whether public or private, will not be sold, exchanged, transferred, or given to any other company for any reason whatsoever, without your consent, other than for the express purpose of delivering the purchased product or service requested.
  • To send periodic emails: The email address you provide for order processing, may be used to send you information and updates pertaining to your order, in addition to receiving occasional company news, updates, related product or service information, etc.

Zevra may disclose your personal data for our business purposes as follows:

  • Among Zevra companies – Zevra and its affiliates may disclose personal data among each other for the purposes set forth in this Privacy Policy.
  • In Connection with Business Transfers – Zevra may sell, transfer or otherwise share some or all of its assets, including information obtained through use of this website, in connection with a merger, acquisition, reorganization or sale of assets.
  • With Providers – We may retain other companies and individuals to perform services on our behalf and we may collaborate with other companies and individuals with respect to particular products or services (collectively, “Providers”). These third parties may be provided with access to personal data needed to perform their functions, but they may not use such data other than on our behalf or subject to contracts that protect the confidentiality of the data. Examples of Providers include credit card processing companies, customer service and support providers, email and SMS vendors, data analytics firms, web hosting and development companies and fulfillment companies. Providers also include our co-promotion partners for products that we jointly develop and/or market with other companies. Some Providers may collect personal data on our behalf on our Site.
  • To Comply with Laws and Law Enforcement – We reserve the right to disclose your personal data as required by law, when we believe disclosure is necessary or appropriate to comply with a regulatory requirement, judicial proceeding, court order, government request, or legal process served on us, or to protect the safety, rights, or property of our customers, the public, Zevra or others.
  • In the Aggregate or De-identified Data – Zevra may also disclose aggregate or de-identified data that is not personally identifiable to third parties for any purpose permitted under applicable law.

You may have certain rights regarding Zevra’s processing of your personal data under applicable, local state law, including, for example, if you are a consumer in California or Virginia. If our processing of your personal data is governed by such laws, the following provisions apply to our processing of your personal data, whether collected online or offline. These provisions supplement the other sections of the Privacy Policy.

Zevra does not use or disclose sensitive personal data for purposes other than permitted under applicable local law.

Zevra and its service providers may collect information about you by using cookies, tracking pixels and other technologies (collectively, “Tools”). We use this information to better understand, customize and improve user experience with our website, services and offerings as well as to manage our advertising. If we have collected your personal data, e.g., through a registration or a request for certain materials, we may associate this personal data with information gathered through the Tools. This allows us to offer increased personalization and functionality on the Site. Your web browser can be set to allow you to control whether you will accept cookies, reject cookies, or to notify you each time a cookie is sent to your browser. If your browser is set to reject cookies, websites that are cookie-enabled will not recognize you when you return to the website, and some website functionality may be lost.

To find out more about cookies, visit

We use technical, administrative and procedural measures in an attempt to safeguard your personal data from unauthorized access or use. No such measure is ever 100% effective though, so we do not guarantee that your personal data will be secure from theft, loss, or unauthorized access or use, and we make no representation as to the reasonableness, efficacy, or appropriateness of the measures we use to safeguard such data. Users are responsible for maintaining the secrecy of their own passwords. If you have reason to believe that your interaction with us is no longer secure (for example, if you feel that the security of any account you might have with us has been compromised), please immediately notify us by contacting us at [email protected].

You may update your personal data and your preferences. Different programs and services may offer different phone numbers, links or preference managers that allow you to inform us of your updates and choices, including opting out of particular communications. Please remember that limited communications may be necessary in order to complete your transaction or for you to participate in a particular program or service.

Your information will only be kept for as long as we reasonably consider necessary for achieving the purposes set out above or for as long as we are legally required to keep it. Please contact us for further details of applicable retention periods.

This Site is controlled and operated from the United States and is not intended to subject us to the laws or jurisdiction of any state, country or territory other than the U.S. The information you provide to us may be transferred to — and maintained on — computers and servers located outside of your state, province, country or other governmental jurisdiction where the privacy laws may not be as protective as those in your jurisdiction.  If you are located outside the United States and choose to provide personal data to Zevra, please be advised that we transfer such data to the United States and process it there.  Your consent to this Privacy Policy followed by your submission of such information represents your agreement to that transfer.

The Site is not directed to individuals under the age of thirteen (13), and we do not knowingly collect personal data from children under the age of 13.

If you have any questions regarding this Privacy Policy, you can contact Zevra at [email protected].

You can also write to the following address:

Zevra Therapeutics, Inc.
Attn: Corporate Secretary
1180 Celebration Boulevard
Suite 103
Celebration, FL 34747

From time to time, we may update this Privacy Policy. Any changes will be effective when we post the revised Privacy Policy. This Privacy Policy was last updated as of the effective date listed above. If the Privacy Policy changes in a way that significantly affects how we handle personal data, we will not use the personal data we previously gathered in the manner described in the new policy without providing notice and/or obtaining your consent, as appropriate. Minor changes to the policy may occur that will not significantly affect our use of personal data without notice or consent. We encourage you to periodically review this page for the latest information on our privacy practices.

You can find a copy of our GDPR Policy here.